 |
|
|
 |
| Families
of Spinal Muscular Atrophy is the largest international
organization dedicated solely to: |
| • |
Eradicating
spinal muscular atrophy (SMA) by promoting and
supporting research |
| • |
Helping
families cope with SMA through informational programs
and support |
| • |
Educating
the public and professional community about SMA |
|
| We are
a non-profit, 501(c)3 tax exempt organization. Funds
will be specifically directed to scientific, educational
or literary purposes in keeping with a charitable organization.
The organization is proud to provide funding to Families
of SMA DIRECTION and to this web site which provide
information and networking opportunities to its members.
We are a volunteer-driven organization. |
| Families
of SMA was founded in 1984 for the purpose of raising
funds to promote research to find a cure for Spinal
Muscular Atrophy, and to support families affected by
SMA. FSMA is the largest private funder of SMA
research and is leading the way to find a cure.
FSMA is currently funding 2 multi-center clinical trials
for 2 different drugs that have shown promise increasing
SMN protein levels and the largest, most aggressive
drug discovery programs ever undertaken to find a cure
for SMA. FSMA has funded over $20 million towards SMA research,
and has already committed an additional $15 million
over the next three years. |
|
|
