is no other experience in the world as wonderful as that moment when a doctor first places your
child in your hands. Your hands cradle, sooth, hug, pray for
caress every inch of your child. The hands of a parent are
intended to protect a child.
These are the feelings we had
when our son Wayland was born March 9, 2003 and our daughter Piper was
born April 15, 2005. In spite of the these feelings, our
could not protect our children when they were both diagnosed with
Spinal Muscular Atrophy, Type 1.
SMA is a genetic disorder that not
robs your child
of their lives, but ties a parents hands meant to
protect them. Our hands could only cradle and hug Wayland
five short months and to hold on to Piper for seven.