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Our
first 2 years after diagnosis were spent in a whirlwind of doctor appointments,
meetings with nutritionists, physical therapists, building a therapeutic pool,
acquiring new equipment, traveling to Madison WI, drug trials in Salt Lake City and
participating in national FSMA conferences.
We became avid fundraisers to fund the cure that they promise is close
at hand. Jeff joined the FSMA board in
2003 and Melissa serves as the Treasurer of the Minnesota Chapter. We enjoy traveling to SMA fundraisers all
over the country and have had a very special connection with the Northern
California FSMA Chapter and the Concert for the Cure.
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